Fragile X Society
The Fragile X Society was formed in 1990 by families whose children had just been diagnosed with Fragile X Syndrome. At that time there were no facilities to support and inform families about any aspect of fragile X and so the Society came into existence.
Discovering that your child has fragile X can be a devastating experience. We want families to have the opportunity of support from others who know the problems, and to have access to full information about the syndrome, including the latest medical, psychological and educational research findings.
With a fuller understanding of the condition, parents can be far more constructive and effective in helping their children to reach their full potential. People supporting adults can also be more effective with their support if they have an understanding of how fragile X affects individuals.
Registered Charity number 1127861.
Who to contact
Where to go
Fragile X, Rood End House, 6
- CM6 1DA
- Age Ranges
- From 0 years to 99 years
- Referral required